About

Hello! I’m Funmi Vanessa Ullam and i’m Eli’s mum, together with my husband Terna Ullam we are raising our little boy in faith.  We are excited about changing the status quo (will explain this more later) and we are open to talking to anyone in the same or a similar position as us. It takes heart and a whole lot of strength and faith to deal with the news that your child has a life debilitating and life threatening condition. We learnt that we had 2 choices:  we could either live in bitterness and fear or we could life boldly in faith and challenge our situation as best as we could. We knew we could hope for the best possible outcome, the best possible solution, the best possible end to our journey. This belief gives us strength.

We also knew that the one thing we could control was being happy, we decided to open up to happiness ( no matter what ) and always focus on the brighter side… If we can see a bright side, we are going to focus on that.

So a little bit about me.  I am a super proud mum to my four year old gem of a boy. Some of my favorite things include Google ( i love the fact i can ask google anything and it tells me ), coffee, Disney, airports, kids and music. I am also probably one of the small percentage of people that like Mondays. I see Mondays as a new start a fresh beginning, time to set new goals and get moving before Friday.  I like wi fi  and i still find bluetooth fascinating, each time it works. I think this is because i didnt grow up with this being the norm.

I work in IT but i’m not a geek ( I don’t think ). I  love the world of IT & how its transforming and impacting our lives. I am hoping that that the technology advancements we see affecting our every day lives will soon be as visible in medicine. Transformational research into cures for a variety of life threatening illnesses is of HUGE interest to me. This is what has led us to set up a charity aimed solely at children with the red blood disease sickle cell. We want to push forward advancements in medicine that will one day mean the end of pain for children suffering with this disease.

This is how Crescent Kids was born, Crescent to represent the crescent moon shaped blood cells in sickle children.

Crescent Kids is a charity whose key focus is raising funds towards research & medical studies for sickle cell. I am passionate about making Crescent Kids a success because we need options to help kids with Sickle Cell. Crescent Kids was born because seeing what we have seen over the past 4 years has propelled us in to a space of needing to make a change. In future blogs i will post link to website and discuss more about our progress so far.

The future belongs to those who challenge the present

So a little bit about Terna (we all call him T) . My lovely husband. T brings sunshine to every situation and for that i love him & for that reason the bad rarely seems as bad. He makes me laugh and we laugh. A lot.  In hard situations when dealing with an ill child its important to remain light. As heavy as your hard feels to Eli we physically stay light, because he needs us to be that way. He needs positivity and laughter and reassurance and we give him that in buckets. T likes gadgets, science, maths, medicine & game of thrones oh and football.

Together we are devoted to giving Eli the best possible life, the best possible health options and we plan to laugh a lot whilst doing it.

Thanks for visiting our unique kid, we hope you will visit again and keep an eye on our journey.

Disclaimer 

Info posted here should not be considered medical advice; it’s not intended to replace consultation with physicians or other health care providers. Links to other web sites are provided as a service, but do not constitute endorsement of those sites by ouruniquekid.com ; we are not responsible for their content. 

Thanks again 🙂